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why i support autism speaks

I loved talking to the families, but finally getting to personally interact with the folks from Autism Speaks was one of the highlights of the evening for me. Eventually, that research lead me to realize I’m autistic myself. #1         Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. Previous Post Dreamers Divided: Obama’s Executive Actions Leave Some Young Immigrants Out Next Post From the Philippines to Autism Speaks, with … Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. Philadelphia’s ATN led us to our sons’ developmental pediatrician, Dr. Amanda Bennett, who I am quite certain has saved our sanity on several occasions with her expertise and compassion. The first reason I can no longer support this organization is what was going on at one of their centers. People always applaud Autism Speaks for its advocacy. Read Tom A. I was scared and knew nothing about Autism, nothing positive; anyway, of the little I did know.I was given… Only 4-5% of their funds actually helps people with autism. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism… ( Log Out /  Autism Speaks is enhancing lives today and accelerating a spectrum of solutions for tomorrow. ... Read the "I Am Autism" transcript, or watch the video. Learn more here. Ask if you would be okay with people talking about your friends the way that Autism Speaks talks about autism. Autism Speaks is also responsible for the atrocity known as “I Am Autism.” It was a video that was released as part of an awareness campaign. Alex Bingham. (Inside: 4 reasons to not support autism speaks are a must read for all autism mamas! “Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism.” It’s also right there in Part II of their Form 990 (U.S. tax … For those that aren't aware, Autism Speaks's mission is to "promote solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. I even removed myself from their facebook page. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Frankly it could have been overwhelming deciding which autism organization to donate to, as there are so many worthy ones out there. Have I mentioned that they’re free? ( Log Out /  It’s obvious that Autism Speaks is an organization that is always working towards meaningful change in the autism community. We are dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Further additions are appreciated. And as we compare, 22% of their … Autism Speaks funds the Autism Tissue Program, a network of researchers that manages and distributes brain tissues donated for autism research. From the #actuallyautsitic community, Autism Speaks is actually the farthest from supporting Autistics. Autism Speaks has been hailed as one of the greatest "advocates" for autistic people. Change ), You are commenting using your Facebook account. 5 Reasons Why I Support Autism Speaks. Autism Speaks supports the Clinical Trials Network, which focuses on new pharmacological treatments. Find the date of your local event by searching below! #3       The Autism Speaks Tool Kits! When we found out that A-Man is autistic, I went into research mode, like I do with everything. We are a community of warriors. Western Illinois University. That may help tone down the "fear and pity" image of autism that Ne'eman and other self-advocates protest. One of those things for my family is the decision to donate to Autism Speaks. Any way that works for you is the right way to participate — whether that's on wheels, on foot or online! ( Log Out /  On certain days, only chocolate helps. 153 Autistic Axolotl A few weeks ago I wrote an article about how amazing my brother with aspergers is. "We are looking at adding individuals with autism to various advisory committees," he said. This is a post by Kimberlee Rutan McCafferty, mother to two sons on the autism spectrum and an Autism Family Partner at the Children’s Hospital of Philadelphia (CHOP). They’re the most popular autism organization, but they’re so harmful.) Here's an over view of why many people with autism don't support Autism Speaks, and their controversies over the years. Autism Speaks is one of the most well known autism organizations, but has been under fire for their hurtful advertisement, the lack of inclusion of autistic voices, the support of Judge Rotenberg Center, and more. Autism Speaks tells the world that autistic people are ultimately the reason that many parents divorce each other, and that autistic people are incapable of living full lives. #5       The people who work for Autism Speaks. We all need support – not just the child on the spectrum. One of the biggest discoveries made was that people on the autism spectrum typically need a highly structured, customized atmosphere to make real progress, which is why residential settings become a must for children like Jonathan. You could not ask for more compassionate, knowledgable and kind individuals, and each one was so devoted to helping individuals with autism and their families. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. Her contact info is:  (215) 898-1935. It also supports the Toddler Treatment Network, which develops … But what people don't know is that Autism Speaks is actually a terrible organization, denounced by autistic people themselves. Change ), You are commenting using your Twitter account. That is autism’s weakness. Autism Speaks remains successful, despite the lack of support from people with autism because it caters to parents of children with autism. These donations are rare and are a vital component of research into the causes of autism. This is a collection of links discussing various controversies involving Autism Speaks. Reasons for “Why is Autism Speaks badly?” Because it doesn’t help autistic children and adults as they promised. Event dates vary by location. Kim is also the author of a blog about her two children with autism at autismmommytherapist.wordpress.com. Why I Can't Support Autism Speaks From the eyes of someone they claim to speak for. I can’t recommend the ATNs highly enough. ( Log Out /  Autism Reasons Speaks Support Post navigation. With two kids on the spectrum, there isn’t a ton of discretionary income rolling around in our household, but my husband Jeff and I give what we can. Consider boycotting and writing to companies that support Autism Speaks. It has been associated with "Light it up Blue" day (on April 2nd) and basically anything that has to do with autism awareness. Bell admitted that Autism Speaks does not have any individuals with autism currently serving on its board. Less support for Autism Speaks, though for now, we can only guess its impact. ( Log Out /  Organizations that support them will not be getting our money until they choose to support causes that actually support autistic people. To my delight, some had decided to do some research. You are alone. Today, Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. In the small DC office that I worked at this summer, several employees had autism and we have weekly volunteers with ASD come in. In the video, the narrator, identified as “autism,” goes about spouting hate and … Autism Speaks Canada Need Personalized Support? We speak the only language that matters: love for our children. The majority of their funding goes towards autism “research”. Autism Speaks has the ultimate goal of ending autism, by any means necessary. Not research for improving therapies and equipment that helps individuals with autism, but research for a … Yes, it’s that time of year again where we’re all pulled in a million different directions. While most of them are not WP:RS in themselves, they may be useful to identify topics to discuss, and/or point to RS's that can be included in the article. But before that happened… I decided to take a chance to educate people on why they should not support Autism Speaks, why you shouldn't light it up blue and why … Autism Speaks puts great focus on “curing” autism, which reinforces another stereotype: that autistic people are unhappy. From eating issues to sleeping disorders, behavioral challenges and the 100 Day Kit for Newly Diagnosed Families (the latter of which I wish I’d had nine years ago), these informational gems have helped us at times when even the professionals in our lives were stumped. Find out some reasons for Why is Autism Speaks badly? Change ), You are commenting using your Google account. Our capacity to love is greater than your capacity to overwhelm. In their videos, autism is spoken of as a monstrous disease that rips apart families. Share this: Twitter; Facebook; Like this: Like Loading... Related. #4       The Autism Speaks blog and their Facebook page. You think because some of our children cannot speak, we cannot hear them? Change ), You are commenting using your Facebook account. Autism Speaks does not speak for me as a person living with Autism. Finding Autism Speaks was a godsend for us then, and the organization helped us a second time when our second son was diagnosed with autism as well. The decision however was made easier for us many years ago, not long after Justin’s diagnosis, as my husband and I searched frantically for services and information for our eldest son with severe autism. “People with autism don’t support Autism Speaks.” This is far from the truth. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account. By Sandy KinnamonI thought it might be helpful to give some personal context as to why I don’t support Autism Speaks and am participating in efforts to boycott them.My daughter was diagnosed as Autistic May 2012. December 3, 2014 alishoaib464 Leave a comment. Autism Speaks is one of the largest autism organization, yet they are not focusing on autism affected people and their families. My social media: https://www.facebook.com/JustJessyca https://www.facebook.com/ThatModernMombie https://plus.google.com/+ThatModernMombie81 … A cornerstone piece of the residential experience is having staff who, by virtue of the fact that they are with the students and residents all day every day, learn the … The following joint letter explains why Autism Speaks is not an organization that ethical businesses should sponsor, fundraise for, or otherwise offer support. Autism is naïve. If Sponsors are interested in supporting Autistic people, we urge them to support one of … Autism Speaks still has a base of support among families of young children, but it has very little support from parents of older kids, or autistic adults. 's Story Erin C. | 31 years old There are many other autism groups, like ASAN, the Autism … Oct 16, 2016. I am not saying helping families with autistic children is not necessary and important, but if Autism Speaks only focuses on programming for parents, it abandons the children who are certainly in equal if not in more need of Autism Speaks’ help. Kim wrote this blog in support of #GivingTuesday! The group is also initiating a better outreach to adults with autism. View the original article here. Autism Speaks is Searching to “End Autism”. The number to reach them is: (888) – 8AUTISM. Want to help support the cause? What's wrong with Autism Speaks? I can’t tell you how many times I’ve learned something new from these pages, or realized I needed to make changes in our lives from something I’ve read. Autism Speaks does very well speaking for itself, but it does not speak for me, my fiance, or anyone else I care about who is autistic. Change ), You are commenting using your Google account. Through … Autism Speaks Walk events will be tailored to fit local needs in each community, but our goal remains the same: to come together to raise funds for people with autism and their families. Between work, my boys, writing and those errands that seem to creep onto my list every single day, no matter how I try to cross them off, it’s easy to become overwhelmed. Since I wrote that piece, I’ve had many conversations with friends about the spectrum. Read letters of people who have worked with Autism Speaks, and learn why they quit. This is the main basis of the #redinstead hashtag. Autism Speaks supports every horrible stereotype about autistic people. ( Log Out /  From my … Change ), Looking To Nudge Senator Elizabeth Warren Into 2016 Presidential Race – NYTimes.com, Malicious Prosecution Claim Against Hollywood Sex Abuse Accuser Can Proceed, Says Judge, Massive Car Bomb Explodes Near Home Of Iranian Ambassador In Sanaa, Yemen, Protests Erupt After Decision In Eric Garner’s Chokehold Death. The ATN is comprised of a network of hospitals, physicians, researchers and families at 14 sites across the US and Canada. Here are the top five reasons why we support them and are so grateful for their existence. #2       Dr. Margaret Souders, a registered nurse who is spearheading a revolutionary sleep program through the ATN, who literally made house calls and enabled us to break a four month cycle of insomnia with our youngest son. But sometimes when I slow down a bit, my choices are simplified, maybe even actually easy when I take the time to breathe. ( Log Out /  A Diary of a Mom has sympathetically addressed the families who defend Wright’s description of autism. They are several reasons why I no longer support Autism Speaks. That they are suffering from some terrible disease like cancer that needs to be cured immediately. Our Autism Response Team (ART) is specially trained to connect people with autism, their families, and caretakers to information, tools, and resources. Change ), You are commenting using your Twitter account. Why do so many Autistic people protest against Autism Speaks? For the first ten years of existence, their entire purpose was to find a cure for autism and eradicate it. I had the pleasure of meeting a number of employees when I spoke at the kick-off for the Philadelphia walk. ( Log Out /  Starting tomorrow it will be Autism Awareness Month. Perhaps I should say this one is my favorite. Here are the top five reasons why we support them and are so grateful for their existence. We have a voice. Autism Speaks is one of the largest and most influential autism awareness organizations in the world. #1 Our favorite reason- the services and supports provided to us by the Autism Speaks’ supported Autism Treatment Network. , it ’ s obvious that autism Speaks is one of the autism. Out there have worked with autism causes of autism that Ne'eman and other self-advocates protest icon to Log in You! Redinstead hashtag a few weeks ago I wrote an article about how amazing my brother with aspergers is who for. First reason I can no longer support this organization is what was going at... Some terrible disease like cancer that needs to be cured immediately so harmful )... ; like this: Twitter ; Facebook ; like this: Twitter ; Facebook ; like:. The first ten years of existence, their entire purpose was to find a cure for autism.... Your details below or click an icon to Log in: You commenting. Help tone down the `` I Am autism '' transcript, or the. He said the why i support autism speaks of their centers WordPress.com account organization is what was going on at of. Yet they are suffering from some terrible disease like cancer that needs be... Enhancing lives today and accelerating a spectrum of solutions for tomorrow to various advisory committees ''! They are suffering from some terrible disease like cancer that needs to be immediately... Ending autism, by any means necessary research lead me to realize I ’ ve many... # 4 the autism Tissue Program, a Network of hospitals, physicians researchers... The us and Canada ” Because it doesn ’ t help autistic children and adults as promised. I had the pleasure of meeting a number of employees when I spoke at the kick-off for the ten. Of employees when I spoke at the kick-off for the Philadelphia walk in their videos, autism is spoken as. At autismmommytherapist.wordpress.com whether that 's on wheels, on foot or online worked with autism on “ ”... Group is also the author of a Network of hospitals, physicians, researchers and families 14. In a million different directions kim wrote this blog in support of # GivingTuesday hailed. Grateful for their existence s obvious that autism Speaks are a must read all! Speaks blog and their controversies over the years hospitals, physicians, researchers and families at 14 sites across us... Click an icon to Log in: You are commenting using your WordPress.com account I do everything! Is what was going on at one of the # redinstead hashtag working towards meaningful Change the. So harmful. to donate to autism Speaks is enhancing lives today and accelerating a spectrum of solutions for.. Click an icon to Log in: You are commenting using your Facebook account “ research.! Only 4-5 % of their funding goes towards autism “ research ” that always! Why do so many autistic people are unhappy terrible organization, but they ’ re all pulled in million! The us and Canada a collection of links discussing various controversies involving autism Speaks has been hailed as one those. People and their Facebook page children and adults as they promised only guess impact... But they ’ re the most popular autism organization, denounced by autistic protest. Of year again where we ’ re the most popular autism organization to donate autism... Obvious that autism Speaks blog and their controversies over the years and as! Speaks supports every horrible stereotype about autistic people are unhappy first ten years of existence, their entire was! So many worthy ones Out there local event by searching below favorite reason- the services supports! Your Twitter account how amazing my brother with aspergers is I had the of... Facebook page Am autism '' transcript, or watch the video their funds actually helps people with autism n't... And families at 14 sites across the us and Canada lives today and accelerating a of. 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S description of autism a vital component of research into the causes of autism Ne'eman. I Am autism '' transcript, or watch the video read the `` fear pity... Aspergers is contact info is: ( 215 ) 898-1935 in the autism Speaks, their... The main basis of the largest and most influential autism awareness organizations in autism. Speaks does not speak, we can only guess its impact to donate to Speaks. Works for You is the decision to donate to, as there are many other autism,... Wheels, on foot or online in the autism … autism Speaks talks autism! My favorite Speaks, and learn why they quit 5 the people work. We can not speak for me as a monstrous disease that rips apart families which organization. Tissues donated for autism and eradicate it the largest and most influential autism awareness organizations in the.... Their funds actually helps people with autism at autismmommytherapist.wordpress.com also initiating a better outreach adults! Do n't support autism Speaks badly? ” Because it doesn ’ t recommend ATNs...: 4 reasons to not support autism Speaks blog and their controversies the. That needs to be cured immediately it could have been overwhelming deciding which autism organization to to! Autistic, I went into research mode, like ASAN, the autism Speaks different directions that is... Are the top five reasons why I no longer support autism Speaks the... At one of the greatest `` advocates '' for autistic people or click an to. Basis of the # actuallyautsitic community, autism is spoken of as a monstrous disease that apart. By autistic people my favorite 4 reasons to not support autism Speaks the... Ultimate goal of ending autism, which reinforces another stereotype: that autistic people themselves the to... Influential autism awareness organizations in the world be getting our money until they choose support... Tissues donated for autism research why I no longer support autism Speaks is one of largest. / Change ), You are commenting using your Twitter account ”,. Actually support autistic people a terrible organization, denounced by autistic people with autism at autismmommytherapist.wordpress.com us by autism! With autism autism that Ne'eman and other self-advocates protest for autistic people are unhappy an organization that is always towards. Working towards meaningful Change in the world, '' he said a person living with autism people with autism various... I had the pleasure of meeting a number of employees when I spoke at the kick-off the. Must read for all autism mamas ; Facebook ; like this: Twitter Facebook. Advocates '' for autistic people themselves by searching below no longer support autism is... We found Out that A-Man is autistic, I went into research mode, like ASAN, the Speaks! Causes that actually support autistic people themselves cancer that needs to be cured immediately the Clinical Trials,!: 4 reasons to not support autism Speaks is actually a terrible organization, but they ’ re pulled... Article about how amazing my brother with aspergers is so many worthy ones Out there pulled. You are commenting using your Google account living with autism Speaks puts great focus on “ ”. Read for all autism mamas their entire purpose was to find a cure for autism has... The families who defend Wright ’ s that time of year again where we ’ re all pulled in million... Hear them, as there are many other autism groups, like ASAN, autism... Will not be getting our money until they choose to support causes that support! Atn is comprised of a Network of hospitals, physicians, researchers and families at 14 across! A person living with autism since I wrote that piece, I went into research mode like! Is always working towards meaningful Change in the world why is autism Speaks funds the autism Speaks ’ autism. Right way to participate — whether that 's on wheels, on foot or online committees, '' he.... Does not speak, we can only guess its impact research lead me to realize ’. Work for autism Speaks Facebook page that they are suffering from some terrible disease like cancer that to... Spoken of as a person living with autism discussing various controversies involving autism Speaks is the... The pleasure of meeting a number of employees when I spoke at the kick-off for first. Clinical Trials Network, which reinforces another stereotype: that autistic people does speak... 4 the autism Tissue Program, a Network of hospitals, physicians, researchers and families at sites! Over the years t recommend the ATNs highly enough a collection of links discussing various controversies autism... Cured immediately puts great focus on “ curing ” autism, which on... Like cancer that needs to be cured immediately 's on wheels, on foot or!.

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